Friday, March 29

The “new life” of the baby who received a free treatment with the most expensive medicine in the world


Edward and his mom.
Caption,

Edward received the new Zolgensma gene therapy, valued at $ 2.1 million.

At just 1 year of age, Edward’s life took an impressive turn, comparable, according to his mother, to having “a new life.”

And it is that this British baby, born in the county of Essex, suffers from spinal muscular atrophy (SMA), which means that he lacks a vital protein for muscle development.

This disease causes muscle weakness and affects movement and breathing, whichdoes than most babies who suffer it do not live more than two years if they do not receive adequate treatment.

Edward received it last August when, thanks to a campaign by his parents, he had access to a new gene therapy with the drug Zolgensma, known to be the most expensive drug in the world, at a cost of US $ 2.1 million.


www.bbc.com

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